LONG TIME NO SEE

hey all. I am so sorry it's taken so long to post...Having two kids sure is different then one.

We are doing well. Summer has been ok. I fell in a funk that was hard to get out of. Unsure about being recalled for school, but I was so that is good. This past week has been productive. More so then the whole summer combined. Dont think I juggled the age difference well with activities for Bug.

Hannah is near crawling and only has a few more weeks in her helmet. PT is over and she is doing great. She has two teeth on the bottom with two more coming through up top.

Bug is excited for first grade but is having nightmares (like at least four different days in this past week) not sure if this is related cause when he is conscious he is excited. He was sick the other day with a temp of 103.1 which made me nervous, he was talking gibberish. But it's passed with just a sore throat to show for it.

I'll be working Middle school this year with a little girl dx with Downs. I know her from when I worked in elementary three years ago and then via case management. She is a sweetheart but a handful.

H wants my keyboard...will try to be better w/ posting...

if you want to follow via FB then email me...I'm addicted

molding

Hannah had her molding the day after she turned five months. I have never heard her cry so hard. It was almost comical. Every time the dr. moved away from her to get something off the bar she would stop crying, then when he came back she would start crying again, before he even did anything. He was great with her.

Two more weeks and my dear sweet baby girl will have her helmet. I will update later with pictures, cause yeah I took pics the whole time. (I even had Mike and the Dr. taking pictures too). I just dont have the energy to do that right this second. Bug has t-ball in a half hour...then I am taking a nap. I'm exhausted.

4 + 2 = SIX MONTHS!!!!...UPDATE

UPDATE

So, I talked to the Ortho place today. I was told that there is a branch in my backyard instead of the one we were referred to. (this is amazing since it's the only place in the state that our ins. covers. Next closest place in the next state over)

SO, I was like awesome and by the way I want a sooner appt. I got one. For next Wednesday, for eval and scan. I am told this should take 90 min. two weeks from then is the fitting.

She said that these dates were tentative because she needs to wait on approval from ins. I said, NO. these dates are set. If ins. doesn't cover it we will pay out of pocket. Her response. Do you realize how expensive this will be. My immediate reply. You do realize this is my daughter we are talking about. I dont care how expensive it will be. surprising she didn't have a response...

So we wait. BUT only for a week.
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Hannah is doing so well that we are reducing her PT session from 2x a week to 1x a week.

I got a call today (message on voicemail) and Hannah's scan for her helmet appt. is June 8th. WTF. JUNE. she will be six months. She was dx at four months. It shouldn't be taking this long. I dont have access to a phone during the day while at work, so I am having hubby call tomorrow to request an earlier date. There better be a time this month.

Right now I am in the line of fire between Bug and his grandfather, Poppy, wrestling session.

better go before I get nailed...

will continue to update soon.

Ms Peggy the PT

Hannah meets Ms. Peggy...I love the expression on Hannah's face. Priceless.


Showing Mommy stretches.

This is the one I am most comfortable doing.


This one much like the first


I think this hurts me more then it does her



Her first official PT session is day after tomorrow. She will have two sessions a week. Tuesday and Thursday. Both at 7:30 before work. ugh. But I will do what needs to be done. This is just a bump in the road and wont hold her back.

Bug starts softball tomorrow. Guess what. I can't find his freakin glove. arg. Tacos tonight, Bug knocked over the meat (which was in my favorite bowl) on the floor, breaking the bowl. I felt so bad for him. He was about to cry. I told him it was just a thing. It could be replaced. Dinner was put on hold while I took hamburg out of the freezer and cooked another batch of meat.

man it's been a busy day. I am t.i.r.e.d. April vacation is over. Back to school tomorrow. The week hasn't even started and I am exhausted. Maybe the routine of school will help me get back on track.

Hannah and X-Rays

Hannah had her PT eval today. She will have PT twice a week. Today we also went and had x-rays done. She is on her way of being fitted for a helmet.

I'm a bit overwhelmed and exhausted. not just physically but emotionally.

It's not bad I suppose compared to what others have gone through and are going through. Many of my friends in blogville and locally.

But I can't help but want to cry that my beautiful baby girl isn't "perfect"

Let it begin

So, I called the ins. company today to find out if they cover corrective helmets. PRAISE GOD and the stars that aligned cause they cover 2,500 bucks worth. The PT that I spoke to over the phone today said that if Hannah needed a helmet they would start at about 1,800.

Hannah's PT eval is tomorrow. She will determine then if H needs a helmet for her Plagiocephaly caused by her Torticollis.

I noticed today that her right ear was higher then her left now.

I swear I am not making this all up. I am looking back at pictures of her when she was first born and even though the flatness of Plagiocephaly, wasn't noticeable the tilting of her head caused by Torticollis definitely was. But I just thought it was because she was a late term preemie and didn't have the strength to hold it to either side.

Bug and his buddy are in from outside declaring they are starving to death, interrupting my thoguhts...So I am off.

Hannah was dx with Torticollis

Hannah in her Bumbo working on her neck muscles




Hannah had her Four month wellness visit today. Her stats are.

weight: 12 lbs 6 oz (17%)
length: 24.5 inches (53%)
Head Circumference 16.5 (71%)

She is a peanut. During her two month visit the dr. advised us to be mindful of her laying on one side too long b/c she was getting a flat spot on the side of her head. We have been really good about this and I brought it up again today b/c the flat spot has gotten worse and she doesn't turn her head to the right well. She will do it, but not for long and only occasionally.

After examining her, she said that Hannah has what is called torticollis

She was referred to PT and after evaluation her the PT may or may not recommend a helmet to help reshape Hannah's skull. It's not totally noticeable in the front. her forehead is pushed forwards a little on one side, but unless she has to wear glasses later in life you probably wont notice. The back is a different story. One side is perfectly round why the other side looks like it was sat on and squished.

The doc. is hesitant for the helmet, but we aren't suppose to lay her on her back for any reason except for sleep. as if. how am I suppose to do that. Wouldn't the helmet help prevent it from getting worse until her neck muscle is working properly?